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Dementia Matters is a podcast about Alzheimer‘s disease and other causes of dementia. Creator and host Dr. Nathaniel Chin interviews leading scientists and caregiving experts to bring listeners the latest in Alzheimer’s disease news, research and caregiver resources. Brought to you by the Wisconsin Alzheimer’s Disease Research Center, find show notes and more resources at adrc.wisc.edu/dementia-matters.
Episodes
Monday Apr 19, 2021
Being Patient Translates Alzheimer’s Disease Science for the General Public
Monday Apr 19, 2021
Monday Apr 19, 2021
Being Patient is an online news source dedicated to providing research news, caregiver information and resources related to Alzheimer's disease. Being Patient founder Deborah Kan discusses how her personal experiences led her to develop the website, as well as how online resources and communities can help empower individuals affected by memory loss. Guest: Deborah Kan, journalist, founder of beingpatient.com
Episode Topics:
- What inspired you to leave a career in journalism and launch Being Patient? 0:58
- How do you decide on the topics you cover? 4:18
- How does social media help build a community through connection? 9:14
- Have you found a certain communication platform that has better reach? 11:25
- What have you learned from caregivers through your work? 13:49
- Can you offer recommendations for finding reliable online sources for health information? 18:58
- Why is it important for the scientific community to have a separate organization that discusses the research? 23:34
- What topics in Alzheimer's disease research have been the most impactful? 27:35
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